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Thursday
Friday
Saturday
Sunday
13:00
— 14:30
Arrivals, check-in & hello
14:30
— 14:45
Welcome
Introduction of speakers, translators and caretakers
14:45
— 15:00
Break
Drop off children
15:00
— 16:30
Introduction on Jacobsen Syndrome
16:30
— 17:45
Establishing and supporting verbal communication with speech-generating devices (SGDs)
18:00
— 19:00
Dinner
19:15
— 20:00
Hands on experience speech-generating devices (SGDs)
20:00
— 20:30
Testimony: how I work with my speech-generating device
07:30
— 08:00
Stress release - guided morning walk
07:30
— 09:00
Breakfast
09:00
— 12:00
Presentation on behavioral issues
12:00
— 13:00
Lunch
13:15
— 15:00
Planning for the future of my child
15:00
— 15:15
Break
Snacks and refreshments in the foyer at a casual get-together
15:15
— 16:15
Artifical nutrition / supplements
16:15
— 17:45
Parents discussion groups
18:00
— 19:00
Dinner
19:00
— 20:00
A personal reflection
20:00
— 22:00
Movie night
07:30
— 08:00
Stress release - morning exercise
07:30
— 09:00
Breakfast
09:00
— 10:45
Hematology
10:45
— 11:00
Break
Snacks and refreshments in the foyer at a casual get-together
11:00
— 11:15
My daily life with ADHD
11:15
— 12:00
ADHD: no reason to panic!
12:00
— 13:00
Lunch
13:15
— 15:00
Presentation on immunology
15:00
— 15:15
Break
Snacks and refreshments in the foyer at a casual get-together
15:15
— 16:30
Cardiology Research
16:30
— 17:45
Group photo and family activity
18:00
— 19:00
Dinner
19:15
— 19:45
Testimony
20:00
— 22:00
Casual get-together and dance
07:30
— 08:00
Stress release - morning run
07:30
— 09:00
Breakfast
09:15
— 10:15
Occupational therapy
10:15
— 11:45
Assembly meeting
11:45
— 12:00
Official goodbye